|
A Death in the Family: Helping Parents Help Their Children |
|
|
|
by Howard S. King, MD with Ruth E. Freeman, MSW
Parents periodically share with us that there has been a
death in the family, for example, a grandparent. Ruth Freeman,
MSW, Program Director of The Cove Center for Grieving Children,
points out that there are many more grieving children in schools
and communities than people realize. Children sometimes display
symptoms of grief or complicated grief, and yet are diagnosed
as anxious, oppositional or hyperactive. In fact, they may
not have had the opportunity to express feelings directly
about the experience of loss.
Pediatricians should consider that unrecognized grief may
be the reason for unexplained, difficult behavior in the child.
Increasing our vigilance at times of grief may also provide
useful preventive opportunities.
How can we help their young child cope with loss when there
is a death in the family?
At such times, we physicians may feel we need to produce
quick answers, and may be reluctant to go beyond the specific
question when parents ask how they can help their child. As
one colleague said, “There is so much pressure within
the health care system these days to be brief.” But,
when we do that, we may miss opportunities for useful interventions.
There are consequences when we are brief in our answers to
appropriate questions from families seeking guidance. When
we do not assess further, we could end up spending much more
time later, if concerns develop into full-blown parenting
problems.
What should pediatrician be aware of when there is a death
in the family? How can pediatricians engage parents in helping
their children develop resilience through the childhood experiences
of loss?
Grieving is a family experience
One question we should consider is, “How are the parents
doing?” If it was the mother’s mother who died,
how is she coping with the death of her mother? Is she grieving
appropriately? Perhaps their relationship was
complicated, even hostile at times, which might make it more
difficult for the child’ mother to cope with the loss.
Or, if the mother is comfortable doing so, we might ask whether
she would be interested in talking about how things have been
going for her recently. We might ask if she could tell us
something about her mother, some of her memories. If that
is difficult for her, or for us, we might prefer to make a
timely referral to a health care professional or self-help
organization for bereavement support.
Such supportive inquiry can help parents identify strong
emotions that naturally arise at times of loss. Pediatricians
can then help parents to consciously choose how to nurture
their children and manage their own stress and grief.
Anniversary reactions
It may be useful to ask parents if they might have experienced
a major loss when they were children. Sometimes, a mother
who finds it difficult to help her child cope with grief may
have memories of being overwhelmed herself when she was a
young child. Or a father might recall being unsupported when
the death of an important relative was treated as a secret,
or his parents might have had a complicated grief reaction
of their own.
If the pediatrician or other health professional is able
to help the parent talk about those early experiences and
memories, it can be very supportive to the parent, and may
help them to be more available to the child.
Helping the child talk about the loss
It is worthwhile for parents to let the child express his
or her ideas about what happened when a grandparent (or other
close relative) died. For example, the child may wonder, if
she had been a “better” child, this might not
have happened to her grandma. Is the child worried about what
might happen to her parents? Might she “lose”
them, too?
Such ideas and worries may have less impact on the child’s
emotional well being if he or she can talk about them with
a parent or other caring adult.
Talking with children about death
Although children think about death differently depending
on their age, most young children need adults to keep information
concrete and simple, and to tell the truth.
Useful language to use when children ask questions is that
“dead” means that the ears don’t hear, the
eyes don’t see, the skin doesn’t feel, the nose
doesn’t smell, the heart doesn’t beat. Otherwise,
it can be very disturbing to think about Grandma’s body
in a coffin.
It is best not to use phrases like “Grandma is sleeping”
or “We lost Dad” or “Grandpa went to Heaven.”
Children take these comments literally, so they may ask literal
questions like, “If Grandpa went to Heaven, why doesn’t
he come back?” “If we lost her, why don’t
we look for her?” Parents’ responses to children’s
questions about the permanence of death may be interwoven
with their religious beliefs.
Some children will be satisfied with the simple explanation
that a beloved relative has died while others may persist
with curious or anxious questions about death. The pediatrician
can play an important role in explaining to school aged children
how the body stops working, for example, using simple terms
to explain what happens when a heart is too sick to continue
to beat, or what a “stroke” is.
Children’s grieving may show up as irritability or
refusal to engage in certain activities associated with the
family member. Adults will need to pay attention to children’s
grief when it is expressed, even when the timing is inconvenient
or when the child’s behavior may be socially inappropriate.
The pediatrician can offer guidance and reassurance to families
where a child is particularly distressed by a death, immediately
or several weeks or months later.
It is useful to let parents know that children grieve differently
from adults. Children may go out to play minutes after hearing
about their grandmother’s death, but two months later,
a trip to a familiar restaurant may recall a memory that brings
the child to tears.
The child and the funeral
What are the parents’ intentions about the funeral?
Should they take the child to the cemetery? Increasingly,
with appropriate preparation, most parents do. Children can
be told what to expect at a funeral and burial, and may have
a strong wish either to attend or stay home. If possible,
children’s preferences should be taken seriously.
It will be helpful for parents to ask a close relative or
family friend, who knows the child well, to be available during
the funeral to tend to the child’s needs. For example,
the child may want to leave the room, or ask questions, at
times when the parents are not emotionally available to the
child.
It is important for parents to be able to engage in their
own healthy grieving process. The child will not be “hurt”
by witnessing the parent “break down,” as long
as the child can see that the parent is getting support from
other adults, and the child is helped to understand that it
is not his or her job to meet the parent’s primary needs
for support.
The spouse
While the spouse of a bereaved parent may take on the responsibility
for the care and comfort of the bereaved parent and also the
children, it may be that the death of an in-law is a significant
loss for him or her as well.
The spouse may also experience an anniversary reaction derived
from memories of her or his own earlier losses, which might
not have been acknowledged at the time. The pediatrician can
reach out to both parents at the time of a death in the family,
involve both parents in discussion and encourage a dialogue
between them.
Coping with loss begins before a death in the family
In early childhood, there are preparatory opportunities for
parents and children to accept loss as a normal developmental
process. For example, helping children sleep through the night,
in their own bed or crib, can be a constructive developmental
challenge. Similarly, helping the child give up breast-feeding,
the bottle or pacifier may also provide experiences of mastery
and resilience related to loss. The same lessons apply to
the loss of the child’s favorite toy or the death of
a family pet.
Sometimes,
these events may come to light when a parent asks the pediatrician
about what is “normal.” In fact, the pediatrician has a sensitive task
at such times. Our challenge may be to try to understand if there is an
underlying worry. The parents may have difficulty helping the child
master these tasks because they bring back painful memories from their
own childhoods. Allowing parents to share those feelings may make it
easier for them to help their children work through loss more
successfully.
Unacknowledged grief in the pediatrician
Of course, physicians and other health care professionals
also have their own experience with bereavement, and may have
unresolved issues with unacknowledged grief. Helping parents
and children cope with loss may stir up feelings that can
get in the way of reaching out to others. If we become aware
of changes in our ways of responding and helping at such times,
it may be useful to talk it over with trusted friends or colleagues.
An example occurred with a physician friend who, at age five,
was fully aware that his father was undergoing life-threatening
surgery, an experience that profoundly affected him and his
family. As an adult, he felt that death was always “just
around the corner.” A few years after he married, his
wife developed a serious although temporary illness.
Shortly after, he began to repetitively lose his keys, wallet
and important papers.
In time, he sought professional counseling and came to understand
how his wife’s illness had stirred up memories of how
anxious he and his family had been when he was five years
old, which he had never had the opportunity to talk about.
By understanding those connections and sharing those experiences
with a compassionate listener, he became more effective in
helping patients and families deal with their own experience
of loss.
Summary
- If parents ask you how to help their child cope with the
death of a grandparent or other close relative, consider
the impact of the loss on the parents as well.
- Helping parents cope with loss will benefit the child.
- Encourage parents to talk about the meaning of the loss.
- A parent may be overwhelmed by a current loss because
it may bring back memories of a previously unacknowledged
loss.
- Remind parents about the importance of providing uninterrupted
time for their child to talk about the death of a family
member.
- Keep things concrete, simple and truthful when talking
about death with the child.
- How children grieve will vary with their age and can
be very different from how adults grieve.
- It does not hurt the child to witness a parent grieving
and receiving support from other adults.
- The spouse of the bereaved parent may also be experiencing
grief, perhaps derived from his or her own previous losses.
- The child’s normal process of growth and development
provides opportunities to cope with loss. Pediatricians
can help parents to understand the value and significance
of such experiences.
- Pediatricians may have their own experiences of unacknowledged
grief. Being aware of such experiences may facilitate the
pediatrician’s ability to be helpful to patients and
families.
Resources
The Hope Program
The Hope Program is a service of the Pediatric Department
of Newton-Wellesley Hospital, supporting parents, caregivers
and children as they attempt to deal with the death of a loved
one. The program also assists pediatricians when a family
under their care experiences loss.
A special bag with play and educational materials for children
ages four through ten, includes a pamphlet for parents and
is available to Hospital services including the emergency
department, oncology, pediatrics, etc. It includes an activity
book to help children explore their own emotions through creative
expression about what happens when someone dies.
The guide for parents advises that “children have the
capacity to mourn beginning in infancy,” and goes on
to suggest guidelines to help parents respond to their child
when he or she is going through the grieving process.
Parents or professionals can contact Lori Stacks at 617-243-6510
to receive Hope Program materials and information.
The Children’s Room
This center for grieving children and teenagers “offers
hope and quality of life to bereaved children and those who
are part of their lives.” Trained, committed volunteers
facilitate groups that meet twice monthly, for children
three to eighteen years old and their families.
The Children’s Room is located at 819 Massachusetts
Avenue, Arlington, Massachusetts 02466. The telephone number
is 781-641-4741.
The Wellness Community
The Wellness Community offers programs to provide support
and education for children, ages five through twelve, who have
a parent or grandparent with cancer. It is located at the Echo
Bridge Office Park, 1039 Chestnut St., Newton Upper
Falls, Mass. 02464. The telephone
number is 617-332-1919.
Web sites
The Cove
www.covect.org
Safe Harbors for Grieving Children serves children and
families in Connecticut and provides useful online information
and guidance, as well as links to children’s bereavement
support organizations in other locations. Books for children
are recommended, including When Dinosaurs Die: A Guide
to Understanding Death by Laurie K. Brown, Children and
Grief by William Worden, and Guiding Your Children Through
Grief by Mary Ann and James P. Emsweiler, founders of The
Cove.
The Centering Corporation
www.centering.org
Offers an extensive catalog of books and materials for
children and adults who are coping with many different kinds
of loss.
The Dougy Center
www.grievingchild.org
P rovides supportive and educational material on line for
children and parents.
|
|
Prenatal visits
Parents are often encouraged to meet one
or more pediatricians a month or two before they deliver their
new baby.
Don’t expect universal support for
the concept of a prenatal visit. One parent said that her
brother belittled the idea of talking to a physician before
her baby was born. He said, "It's how he handles your
kid, not how he talks to you!"
Who is the patient? Is it the infant? He
or she is not even born yet! Why meet? The fact that you and
the parents are meeting makes a number of crucial statements.
Who is the patient?
Surprisingly, this is a basic question throughout
the child's growth and development. Parents come in, appropriately,
with a list of questions. But when they express concern about
their baby, about whom are they really concerned? The questions
may seem to be about their infant but, oftentimes, may reflect
a different agenda. For example, they may disagree about the
management of a particular problem, or the child may remind
them either of themselves or some other relative in their
current or past family. The questions may also reflect some
insecurity with their decision-making or with themselves as
to whether they will be competent parents.
Our challenge is to figure out what the
real issue is and then, in an alliance with the parents, help
them bring their concern to the surface. Helping parents helps
children. We need to keep the family in focus at all times.
Forming a relationship
The mother-to-be has had periodic exams
with her obstetrician. But now, delivery is imminent. Who
will help her cope after her baby is born? As one mother put
it, "It all seems so unreal!" The prenatal visit
can be a bridge not only to working with a new professional
but also to preparing for parenthood.
Parents often bring a long list of questions
to the prenatal visit, including: "What are your attitudes
about breast feeding?" "How do you feel about circumcision?"
"What should I do if there is an emergency?" "How
do you feel about silly questions?"
It is not just what we answer, it is how
we answer that is crucial. Do we give parents adequate time,
do we listen in a way that suggests we are addressing their
unconscious concerns, are we listening with empathy, will
we help them become competent decision-makers? Most important,
do we enjoy listening to their "story"?
Being able to ask "silly questions"
is a common concern of parents. With anxiety, and almost apologetically,
they want to know how receptive we will be to their various
questions. They ask, "Do you have someone in your office
who can handle trivial questions?"
I urge them to ask anything. Behind every
such question there is a parent who has good reason to be
concerned, based on past experience. Or, there is a parent
who was raised in an environment that may have demeaned her
judgment and competence.
Not only should we attempt answer their
questions with thoroughness and compassion. We should also
try to make their experience with the "authority figure"
of a physician a corrective experience, one in which they
feel increasingly competent to trust their own judgment.
Spending sufficient time answering questions
will not only be helpful to parents but also helps the child
and family grow to their fullest potential.
The prenatal visit can also provide clues,
ahead of time, for when we might anticipate a relationship
problem with a parent. One mother said, "My husband comes
from a family of doctors. He is always looking for a scientific
explanation. He can be pushy ... abrasive. But sometimes it
is very helpful." Such information helps us to meet the
needs of parents and gets communication on the right track
from the beginning.
Commitment to prevention
We convey a message when we ask about the
parents' history, family history and prenatal fears. The underlying
message is, "How can I help parents become competent,
how can I help them prevent those problems they are concerned
about from happening?
At the same time, we need to be sure that
we are functioning within the parents' expectations. Do they
want us to help them that way? Will they feel supported or
will they feel threatened by a physician who cares about their
personal and family functioning?
Trigger questions
You are familiar with the standard prenatal
visit, and with the kinds of questions that you routinely
ask.
How you ask and what you ask about during
the prenatal visit makes a statement of your intentions, and
you are able to observe how comfortable parents might be with
a relationship that explores psychological issues. Thus, asking
a question with a preamble like, "May I ask you if ...
" gives parents the opportunity to accept or decline
as well as prepare them for situations in the future when
they might be asked to reveal how they are feeling, or when
there are tensions at home.
Also, asking parents what expectations they
have about the role of a pediatrician may be helpful. The
thoroughness of the interview, as well as how you follow up
areas of concern, will reveal your intentions. One parent
noted that "counseling" appeared to be my specialty.
I said that while it was, some parents might be uncomfortable
with a pediatrician who attempts to explore the emotional
side of family functioning. I asked, "How would you feel
about it?" She said, "I need emotional guidance.
I've never been a parent before. I want someone who will teach
us how to manage ..."
The challenge is, "When will a parent's
or a pediatrician's question become a 'trigger question,'
suggesting that the pediatrician should be alert to some hidden
issue?" Here are some examples from my practice:
-
"How old are you and your
husband?"
One parent said, "My husband is
48, I am 33."
Why is there such a difference in age?
It turned out that this was his second marriage, divorced
at 24. What happened? Does it have any implications for
this current marriage or their children?
-
"How long have you been
married?"
One parent said, "Five years."
Was there any special reason why they took five years to
start a family? "I wasn't sure I wanted to have a child
... I see myself as a selfish person. Would I want to give
up my freedom? ... I have my own business ... [whereas]
my mother was a 'sixties' person. She stayed at home, taking
care of me and my siblings."
She is sharing her ambivalence. I praise
her for her openness. I suggest that she may feel this way
periodically, not to feel guilty for having such feelings,
and that she can feel comfortable expressing them with me.
I support the idea that, over time, she will be able to
meet both her maternal and professional needs.
-
I am asked, "How do you feel
about breast-feeding? Will you be supportive?"
One mother said, "I'm not sure that
I want to breast-feed even though my husband is lobbying
for it. He thinks it is a great idea. I'm not sure I'll
like it." I tell her that I'll support her whatever
she decides. She shouldn't feel guilty, however, whatever
happens.
-
What kind of support system does she
have in place?
Where do her parents live? If she is
married, where do her in-laws live? Will they be supportive?
One mother replied that one of her parents
lived locally, the other lived overseas. "Are they
divorced?" She replied, "My parents were divorced
when I was six years old. My father was abusing my mother
at the time. I started living with my mother until my father
kidnapped me when I was seven!" This same mother slept
with her baby after the child was born. Her husband was
concerned that she might be reenacting what had happened
to her when she was young.
Another parent noted his in-laws were
going to be living with them after the baby was born. He
was worried that it would take them some time to regain
their privacy.
Still another mother commented that both
sets of grandparents live in another state, and she asked
if I would be available to help her cope.
-
"Do you have any fears
about this new baby?"
"My husband has gripes about
what happened to him growing up ... He blames his father
for a lot of things ... He still has a lot of 'stuff' ...I
worry how he will relate to our new baby. Especially since
we know it is going to be a boy ..."
I tell her that there is bad news and
good news. The bad news is that it is understandable she
is worried that history might repeat itself. But the good
news is that if we are alert, we can intercede. Furthermore,
if her husband gets involved in parenting, he may discover
that he has "a second chance." As he becomes more
aware of his feelings he may be able to share what it was
like growing up with his dad, learn more about his father's
background and, perhaps, come to terms with these old grievances.
Another parent says, "My brother
is schizophrenic. He appeared normal until he was sixteen
years old." Will she worry if her little boy is shy
at six or if he seems transiently moody at a later age?
Will she be concerned about leaving him to go to work because
she might predispose him to some long range problem?
Another parent was concerned that her
child might inherit her husband's amblyopia, and she asked
if I would be able to pick up this condition early enough.
-
The contract
One parent introduced this topic by discussing
a group practice she had interviewed prior to her coming
to see me. She noted, "I was told I might have a different
doctor each time. I worry about there not being continuity
of care."
This gave me an opportunity to talk about
what my practice was like, but I also encouraged her to
let the group practice know how important continuity of
care was for her. Continuity of care would seem to be a
crucial issue in a pediatric practice which has as its goals
enhancing the competence of parents and attempting to prevent
emotional difficulties in children and families.
I also suggested that our ultimate goal
is to help parents become good decision-makers. Thus, while
some situations (like a high fever or injury) might require
an immediate response on my part, our goal should be to
help parents figure out why they were concerned about a
particular issue. Our task is then to support them with
finding a way to achieve their goals.
-
The issue of separation
A parent was planning to go back to work
when her infant was six weeks of age. She intended to breast
feed until that time. "Should I give him a bottle before
that?" "Why?" "I'm afraid it will be
a tough transition ... I worry that he won't take a bottle."
"Then what?" "I won't be able to go back
to work!"
I suggested that while it might be a
little difficult for her infant, it would be harder for
her. She was going back to work, primarily for financial
reasons. I felt it might be helpful for her to anticipate
the sadness she might feel when she went back. I said she
would work it out and her husband and I could help her when
the time came. I also encouraged her that her infant would
take a bottle when she set her mind to it.
It was important, however, to consider
reviewing her and her husband's past history to be sure
there were no hidden issues which might make her more vulnerable
to the issue of separation. If there was, it might be useful
to differentiate those situations from the present where
the parents seemed to be functioning in a normal way and
appeared capable of healthy adaptation.
-
What plans do they have for child
care?
If parents don't bring this up, it is
important to do so, not only to understand what kind of
arrangements they have made but also how they feel about
it.
One parent said, "I heard that infants
pick up a lot of colds. Is there any way you can prevent
that?" This same parent was also trying to cope with
her in-laws who felt she should be staying at home with
her child. They would say to her, "We got along without
a lot of luxuries ... Are you sure you need to work?"
Helping parents work out their ambivalence
about working, evaluate the positive or negative feedback
they get from people around them, diminish guilt, feel they
will be competent to manage -- are important tasks for the
pediatrician.
-
Reassurance about physical problems.
One father was worried his child might
inherit his serious allergy problem. A mother worked in
a potentially hazardous industry. "Do you think my
child might be predisposed to some type of abnormality?"
We need to be prepared to help parents get specific information
about such issues.
-
Potential feeding problems
One parent asked about adding cereal
to a bottle. "They say it helps a child sleep through
the night." I suggested that she consider not doing
that. I did acknowledge that sleep problems are a common
concern during the first year of life. But, regardless of
the etiology, I attempted to convey that hunger was rarely
a contributing factor.
I said I would help them manage any sleep
problems that might emerge, and also tried to have them
reconsider the tendency to use food or extra feedings to
cope with pain or stress.
-
Reassurance about family issues
One parent said, "All of us had
horrible colic. My mother said, 'We never slept.' Do you
think I'll have the same problems with my infant?"
Another parent called herself "the
worrying type." She seemed very anxious. It turned
out that her mother had tuberculosis and was hospitalized
for a year shortly after she was born. She, in turn, was
placed with her aunt during her first year of life. One
could hardly be surprised that she expected the worst. But,
by linking up with a counselor and talking about that experience,
along with continued support, she turned out to be a very
effective mother.
Finally, one parent mentioned that she
grew up in an alcoholic family. She was worried about her
brother who seemed to be treating his child the way she
and her brother were treated by their abusive father. She
asked, "How do you help a sibling change his ways?"
- The role of fathers
Fathers usually come in for the prenatal
visit. At that time, I encourage them to either accompany
the mother to the periodic checkups or even come in by themselves.
I believe that mothers are helped to get in touch with their
feelings and memories as they get involved with the evolving
development of their infant. Fathers, who have a harder
time with this in our culture, deserve the same opportunity
to do so. Reflecting back and forth over time may give them
that chance whenever they bring up concerns about their
young infant.
It is worth reminding the father that
even if the mother is not concerned about a particular issue,
he can call you himself. This is not meant to demean the
mother's judgment but rather to help him be comfortable
with expressing his own fears and anxieties. One father
asked, "When should I call?" I said, "Whenever
you need to!" "I'm afraid I'll go overboard""
I said, "I'm not worried. You'll gain more and more
confidence over time. If you don't, it's my job to help
you figure out why."
-
Finally, "What should I read?"
This is a common question at the prenatal
visit.
While I encourage parents to read anything
they think would be helpful, I try to make a few points:
I urge them to be skeptical about everything
they read. I want them to trust their own intuition and
judgment.
I suggest that within each of them is
their own "book." They will write this "book"
over time as they listen to their own questions, raise issues,
and filter back answers through their own senses. If they
can do that, the confidence that may result from mastering
current issues will be available to them in future situations.
I pass out a booklet of my own
at the prenatal visit. While it has much useful information,
I tell them the most useful item is in the title, "Parents
Have Rights Too!" The message I want to convey is that
parents have to consider their own needs simultaneously
with responding to those of their infant. Giving parents
permission to consider themselves can validate their ambivalence
and help them carry on with the inevitable sacrifices that
being a parent requires.
|
|
|
Developmental Tasks for Successful Parents |
|
|
|
Parenting
is a process – it goes on throughout the parent’s
life – but how it is facilitated during the first year
of a child’s life may set the tone for the rest of the
parent-child relationship. If the goals below are achieved with
a sense of mastery during the first year, it can be a source
of strength for the parent as he or she works to help the child
grow over time. Think about these goals as you work with parents.
|
|
Read more...
|
|
Pediatricians can make significant contributions
to preventive mental health for children and families. As
much as we already do, we could do even more in the areas
of addiction, mental illness, and family dysfunction.
Our professional self-image
What has kept us from doing so? In part,
we may underestimate our capacity to be effective "agents
for change." We may only see ourselves as taking care
of "little people," overlooking that the family
system requires equal concern. It is also possible that
we may be unaware of how effective we could be by being more
attentive to parental concerns.
The cost of not spending time
The result may be that we end up doing less
in the area of preventive mental health than we might, possibly
depriving families of crucial intervention. By missing such
opportunities, society and insurers may end up spending more
financial resources because of delayed recognition of such
problems.
The benefits of spending time
In pediatric practice, time and thoughtful
listening are the tools for change. If we spent more time
listening to how families struggle to cope, we might reduce
the frequency of drug abuse and mental illness.
By listening to families tell their stories,
pediatricians may unearth "family secrets," such
as incest, child abuse, or alcoholism. At the same time parents
are raising their children, they may unknowingly be repeating
much of their own life, including harmful behavior they experienced
as a child.
If we pediatricians attempted to listen
more effectively (with our own "third ear"), particularly
at times of transition or change, we might uncover subtle
pathology. What would happen if we did? We might have the
opportunity to encourage the capacity for change in how parents
view their children.
The challenge
But how do we harness time in the service
of these goals? Given all the tasks for which we are responsible,
particularly in an era of managed care, how can we use time
in a way that is practical for us, financially? When a parent
raises a troublesome problem over the phone or in the context
of a routine well child visit, what can we do?
Sometimes, we can consider asking a few
questions that might help us determine if the child is in
difficulty or, alternatively, is doing well with many strengths.
If the latter is the case, we can reassure the parent that
nothing further needs to be done at this time.
Most of the time, however, it is difficult
to be certain. Then what? One possibility is to invite the
parent or parents to come back at a quiet time of the week
(it could be a weekend, evening, or designated afternoon).
The important thing is that it be at a time when you won't
be interrupted by another patient, secretary, the phone or
other distraction. If the parent perceives our mind is elsewhere,
our effectiveness is diminished.
A second, equally alternative is to consider
referring parents to a trusted colleague who is a psychologist,
child psychiatrist, or clinical social worker. We should not
underestimate the value of a pediatrician briefly assessing
a parent's degree of concern and, sensing that some exploration
would be valuable, helping to expedite a referral in a supportive,
non-stigmatizing way. It has been wisely said that "half
of therapy is preparation for therapy." (Dr. Leston Havens)
If pediatricians could accomplish that, they would be making
a great contribution to the mental health of the child and
the family.
The parents' response
If we do encourage parents to come in to
talk, they may be delighted (although anxious) and pleased
that we would be willing to give them time. Or, they may suddenly
decide that the problem is not so serious and decide to wait.
At such times, there can be what is sometimes called "a
flight into health" and the child seems to get magically
better. (Anything rather than discuss the problem with the
doctor!) Or, finally, the parents may consider that the problem
is serious enough to accept a referral to a psychologist,
clinical social worker, or child psychiatrist, rather than
return to meet with you.
By our taking the problem seriously, parents
are obligated to decide whether they are serious themselves.
We may have already saved ourselves time by asking parents
to decide whether they want to continue complaining (thinking
that we won't pick up on it), or whether they want to roll
up their sleeves and begin to work on the problem.
How much time would it take?
Suppose the parents take us up on the offer
of a return visit. How much time would it take? If we chose
to, we could help parents describe the problem, its history,
contributing factors, their feelings about it, and what to
do about it in 45 minutes to an hour. We will become more
skillful with time and practice, but if it is a definitive
and thorough evaluation, it could take as long as an hour.
That seems like a long time. I would propose,
however, that if we do this once in a child's development,
that is often all it takes to start solving problems in the
child's life, and thus the family's life. It may not cure
the problem but, at least, we and the parents will begin to
understand what is going on. From that standpoint, that hour
is really very short and, potentially, very productive.
Helping parents be in control
For me, it is helpful to ask parents at
the beginning, "What would you like to gain from this
meeting?" Not only does it keep the meeting focused and
productive, but it also helps parents feel empowered and in
control. It is not the pediatrician's visit, it is theirs.
They are the decision-makers. As we help them become active,
we may be helping them gain control over their lives and affect
their child's behavior in positive ways.
What have we accomplished?
What have we accomplished in that hour,
besides our own understanding of the problem, if we have done
it right?
- The family may have begun to unburden
themselves regarding the problem.
- They are grateful that we have taken
them seriously and not suggested, without discussion, that
the child will outgrow the problem.
- They have begun to be reflective about
the problem. By inviting them to talk to us, they begin
to think differently about this child, what the behavior
could mean, what their worst fears are, what they think
could be the cause.
- Finally, we and the family have begun
to formulate a plan and share expectations.
Reimbursement for the return visit
Do the medical insurers care about what
has been accomplished? Do they value what we have done? Several
local insurers have pledged to reimburse pediatricians for
spending this time, with the following stipulations:
- That the time spent was actually provided
- That we did a thorough evaluation
- That we follow up by reevaluating, with
the parent, how the child and family are doing over time
Outcomes
Oftentimes, just one meeting may clear the
air. At that point, we may be able to reassure parents that
the child is basically fine, the problem is transient, that
it can be explained by a situational factor, and no further
exploration is needed. Alternatively, we may discover with
them that the problem is serious and warrants further assessment
by a mental health professional.
A reevaluation may be required from
time to time as the child moves through different developmental
stages. It doesn't mean that the first evaluation was inadequate.
It may just mean that some things become apparent only over
time as the child confronts subsequent developmental stages.
Nevertheless, we can build upon our earlier evaluation and
take advantage of insights gained from that initial assessment.
|
|
|
The Psychosocial Assets of the Pediatrician |
|
|
|
Pediatricians
sometimes think they will be "starting from scratch"
if they address the mental health issues of children. They don’t
realize how much they are already doing that can help them
in this area.
Although you may feel you lack the training
of a mental health clinician, that seeming deficiency is balanced
by your natural intimacy with many mental health concepts.
You make use of this knowledge all the time in your work with
children and families, often without realizing it.
By reminding yourself of the following
attributes of your relationship with parents, you may feel
even more confident when you work with families.
The pediatrician as historian
Over time, listening to parents discuss
concerns about their children, you can often understand the
ways in which certain families may be vulnerable. You may
be able to use their history to discover why a particular
family member may have evolved to become the representative
for the family conflict.
What you hear may seem initially confusing.
However, your observations over time will make increasing
sense and may suggest potential opportunities for intervention.
The development of trust
It takes time for parents to form a trusting
relationship with a therapist. In contrast, family members
have usually known you for a long time. If they believe you
are willing and able to intervene at the right time, parents
may be ready to be engaged, psychologically, when the need
arises.
Furthermore, you have developed credibility
and trust through previous successful interventions involving
illness and physical health problems. The transition to viewing
you as an ally for emotional crises may frequently seem very
natural to parents.
Crisis intervention
As a pediatrician, you play a unique role
as witness to all the developmental stages from birth to adulthood,
not to mention the various joys and sorrows to which families
are exposed over time. On such occasions, a host of complicated
feelings emerges between family members. Relationships change
and require new adjustments. With your understanding of the
family history, you may be very helpful by suggesting opportunities
for more constructive attitudes and choices when they confront
such issues.
A reflective attitude
A psychologist studying two groups of children,
one with anorexia and one without, speculated that one factor,
among others, might account for the difference. She suggested
that a characteristic of the parents in the control group
was the existence of a "reflective attitude." Those
parents seemed to have an introspective but not guilty nature,
a striving for healthy dialogue between parent and child.
They seemed to be working to understand their children's behavior
but not be so preoccupied that they failed to give their children
the space and direction they needed to grow as separate human
beings.
You use your well-child visits, without
realizing it, to encourage this reflective attitude. You ask
questions like, "How is your child doing?" "What
are you pleased about?" "What are you concerned
about?" "What do you think it means?" "How
are you doing?" "How are you and your spouse (or
partner) doing?" These questions, and others, stimulate
parents to reflect, constructively, with you. Such parents,
in turn, are often able to adopt a similarly reflective attitude
with their child.
Steering the family through a morass of
experts
There is the danger that, by asking such
questions, parents may wonder if you are being judgmental.
Not so. You are merely trying to help them articulate how
they feel. You are not just being supportive but are also
encouraging them to use their intuition and healthy gut-feelings.
There are many issues about which "experts"
write and lecture. The point is that for such issues there
are no right answers, only right answers for some people.
Your task is to help parents come up with a solution, in a
logical way, that reflects their own feelings and what is
appropriate for them. Ideally, you are not just helping
parents deal with a problem today, but rather with how they
and their children cope with problems for the rest of their
lives.
One of your objectives, therefore, is to
protect parents from feeling guilty as they encounter a variety
of experts who tell them that there is only one way of doing
things.
The concept of the "right-lower-quadrant"
What do you do when you try to decide if
your patient has appendicitis? You start your exam in the
left-upper-quadrant and gradually work towards the area of
greatest discomfort, i.e. the right-lower-quadrant.
Similarly, when you are dealing with a family
in pain, you try to understand what is going on with the family
as a whole, what their strengths are as well as what they
are worried about. Gradually you discover the real issues.
You don’t avoid those issues because you fear you may,
temporarily, bring pain or sadness to the surface. If you
have the family's permission to do so, your investigation
may bring a secret problem to the attention of all concerned
and, by so doing, may bring relief.
Searching for strengths
The evaluation of a family problem means
exploring the total functioning of a child and his family.
Problem areas may be discovered that need attention. But,
just as likely, investigation can bring to light many areas
of mastery and competence for both the child and parent.
It is important to discover these strengths.
Helping parents remember what they have accomplished may give
them the esteem and confidence to deal with issues that remain
to be resolved.
The child as an agent for change
As parents help their children through the
stages of emotional growth, they inevitably encounter experiences
which may bring to mind troubling memories and feelings of
their own that may have become repressed. Sometimes their
coping methods have been successful. Often, however, they
have not.
As children go through these different stages,
the parents' old adaptations may be disturbed. It can be like
when a scab is peeled off, revealing a poorly healed wound.
At such times, parents have the opportunity to reexamine such
wounds and contemplate how successful, or not, they have been
in resolving such hurts. In short, children, without realizing
it, give parents a second chance to revisit their past and
the opportunity to resolve some of their old problems.
When parents express thoughts and feelings
about their children, their defenses against thinking about
themselves may be less rigid than at other times. If you have
a good alliance with parents, you can help them clarify such
issues. In that sense, the child may do as much for the parent
as the parent does for the child.
System theory
It is common, in a well-child visit, that
you may end up considering several family members simultaneously.
A parent comes in to talk about one child who has a rivalry
with another sibling. This may remind parents, in turn, of
how they interacted with siblings when they were younger and
how their parents dealt with it. So, unlike other physicians,
you may be involved, consciously or unconsciously, with systems.
Systems theory as it pertains to families
takes into account not only how individual members relate
to each other but also how the family as a whole develops
and changes over time. Thinking about families this way may
help you understand causality in regard to childhood problems,
and may even suggest useful ways of intervening.
Parenting, the archetypal way to gain competence
Regardless of how people are raised, regardless
of their education or status in work or marriage, all of us
are given a fresh start when we become parents. As potential
allies to the parent, pediatricians have a great opportunity
to help nurture that sense of competence.
The parent who acquires competence in this
role can usually master most of the other challenges in life.
The routine office visit as a corrective
experience
As a pediatrician, you shouldn't feel you
are just a source of information. You are also seen as an
authority figure (although maybe less so these days). Regardless
of how you present yourself, parents may view you, and respond
to you, the way they responded to other authority figures
in their past.
How would you characterize the ideal pediatrician-parent
relationship? Might it not include patient listening, a non-judgmental
attitude, permission for the parent to express a variety of
feelings, and an absence of ridicule and condescension? You
are always in a position to give advice. You may be most successful,
however, when you help parents understand that they have choices
and that they can develop a sense of competence in making
good decisions.
Furthermore, parents may use the relationship
with you as a model for learning and, in turn, a model for
how they can listen and intervene constructively with their
children.
There are other aspects of the office visit
from which parents may gain insight. For example, many of
the families you see may have difficulty expressing feelings,
and some may tell their child that "big boys don't cry!"
But throat swabs are unpleasant, shots do hurt! It may be
useful when you give an injection or take a throat culture
to say, "It may hurt a little ... It's all right to cry."
Such corrective experiences for children
and their parents, however trivial they may seem individually,
become increasingly significant in the aggregate, helping
both parent and child gain confidence and express feelings.
Working with parents where they're at!
You will be more successful in helping parents
manage the emotional growth of their children if you consider
starting with where the parents are.
Suppose a parent came in with a four year
old child, concerned about tantrums and the child being "out
of control." The parent wonders if the child has food
allergies or could be hyperactive. You may personally believe
that the tantrums are emotional in origin. Your task, then,
is how to help the parent consider that possibility and manage
the child's behavior from that point of view.
If that is the case, you will have a number
of tasks. You may ask yourself (and, ultimately, the parent)
why the parent would consider the unlikely possibility of
food allergy or hyperactivity. At the same time, you want
to convey respect for the parent who has shared that belief.
At some point, you will express your own contrary, even though
tentative, point of view. Still, consider offering parents
the choice (e.g. temporarily exploring food allergy) and leave
it to them to follow their own initiative.
Double- and triple-identification
You may be the first person to hear inappropriate
labels attached to a child, e.g. the one month old infant
who has a "terrible temper" or who is "high-strung."
(Is she talking about her spouse or her siblings?) Or you
may hear about the six year old with a "binge for crackers"
(reminiscent of an alcoholic grandfather?).
You don't know if these things are true
unless you think about listening, not only to the parent but
also to your own senses as you become aware of an inappropriate
label applied to the child. At that point, ask yourself whether
the parent is really thinking about some individual either
in her present life, or in her past, to whom she is attached
by an important unconscious conflict.
In short, you may wish to consider
that the child may be identified by the parents with people
from the parents' past. How you verify that intuition and
how you share it with compassion is another matter, but it
is important for you to recognize it.
Combating the self-fulfilling prophecy
How many times have you heard parents say such things as,
"I'm going to have a lot of problems with her when she
is a teenager" ... or ... "He is a high strung kid!"
... or "He'll never change!"
You will have many opportunities in your pediatric visits
to constructively confront parents, at the appropriate moment,
when they express such ideas and ask why they contemplate
such outcomes.
The longitudinal benefit of psychosocial pediatrics
Pediatricians need to remember that the emotional growth
of parents occurs over time. It is an evolutionary process
which occurs during the entire span of their children's lives.
Each crisis, each developmental stage of a child, in fact,
each child in a family provides parents with opportunities
to gain insight and acquire mastery over a variety of unresolved
life experiences.
The relationship between you and parents is like a book
with many chapters. If you have a collaboration with parents
based on trust and mutual respect, the outcome would seem
salutary for the child and the family.
|
|
|
Don't You Need Special Training for Psychosocial Pediatrics? |
|
|
|
The answer is "No!"
The best kept secret about doing this work is that it takes
almost nothing more than just sitting and listening. If you
can listen attentively to "the family story," and
regard the parent as the essential teacher, the environment
is set up to help you acquire these psychosocial skills over
time.
While reading and going to lectures can be helpful, the
real teacher in psychosocial pediatrics is the parent. I have
been impressed, over and over again, how often listening to
and understanding the parent’s experience reviews for
me the basic lessons in becoming aware of a problem, understanding
what it is about, assessing its severity, and contemplating
resolution.
Our task is to set the stage and then, respecting who the
parents are, allow them to tell their story. The key is to
view parents as our teachers. If we create the right environment
and sit back and listen, parents can often help us understand
what the problem is, how it came to pass, why this particular
problem, and how we can help the child and the parent begin
to gain mastery of the situation.
Are there certain prerequisites that give us a running
start?
One prerequisite is our professional motivation. Do we want
to do this kind of work? Are we able to see the child as who
we, or our siblings, once were, wishing that someone had cared
about what we were going through, what we were worried about,
what we were feeling? Can we see the parent as who we were
as a parent, wishing that someone had reached out to us to
help us discover that we could learn to be competent, and
had offered to rescue us from our own anxieties about being
a good parent?
Or, consider our own parents. What would have happened if
someone had reached out to them when we were growing up --
not only for our own sake, but also for our siblings and,
especially, for our parents themselves?
When I listen to parents, I do so attentively. If I listen
closely, the problem unfolds and, repeatedly, family after
family seem to validate the lessons of how to listen and how
to intervene.
Another prerequisite is empathy. Those parents could be
us or our own parents. No longer is it just what we say or
recommend, but how we value the opportunity to be involved
in this discussion. Investing the parent with the respect
that one would reserve for a valued teacher, combined with
empathy, is empowering almost regardless of what we say. Perhaps
for the first time in their lives, at least as parents, someone
is saying to them, "I am interested in how you are feeling"
and "It would be a privilege to see if I could help you
understand how to solve this problem."
If we help parents feel so engaged, then they, in turn,
may be able to replicate that experience with other members
of their family, be it their spouse, their child, or perhaps
their own parents. In order to do so, their own batteries
can be charged up by the pediatrician-parent relationship.
An additional prerequisite is respect for ourselves in our
professional role. I call this "the pediatric advantage."
We bring to the table certain unique strengths just as the
parent and the child have unique strengths waiting to be discovered
in the context of the meeting.
Our motivation, empathy and self-respect can enable us to
practice pediatric medicine and family care in effective ways
with the highest standards for quality of care.
|
|
|